Increasing Trust in the E-Health Environment: Privacy Mechanisms and Policy Problems
Growing pressure on the health sector to increase quality of care, improve outcomes, and reduce costs is driving industry toward widespread adoption of electronic health records, the sharing of patient information electronically, and storage of information in the cloud. Public Health and scientific researchers are also anxious to gain access to these potential new sources of data to map population health trends, understand disease processes, and produce scientific evidence of effective interventions. However, if patients are not confident that the mechanisms by which doctors or researchers collect, use, and share personal health information are respectful of their privacy, they may not be candid about their physical and behavioral symptoms, lifestyle choices, or other social determinants of health. Candor about these intimate details, willingness to submit oneself to examination, and recording of data are necessary precedents to maintenance of the individuals health, but without these, the public health is also at increased risk.
What types of mechanisms are being considered or should be implemented to increase trust in the expanding electronic health care and health research environment? We will explore computational, ethical, and policy issues that arise from several mechanisms proposed by HHS advisory committees and industry.
After earning her law degree, Maya clerked for the Honorable Vanessa Ruiz at the D.C. Court of Appeals, and was briefly engaged in the private practice of law until returning to federal service in 2003 as the Privacy Advocate of the Internal Revenue Service.
Ms. Bernstein earned a Bachelor of Arts at the University of Michigan, Ann Arbor, dropped out of the graduate program in Science, Technology, and Society at MIT to pursue the life of a policy wonk in DC, and earned her J.D. at American University.
To watch the recorded presentation, register at:http://www.tvworldwide.com/events/nsf/140320/.